Support
Groups
If you would like me to add your organisation to this list, contact me. I would also be delighted to add links to your site. If you don't have a web site, I can add a page about your organisation to this site. Just email me some information and photographs.
If you know that any of the information on this list is out of date, then please contact us.
| Bristol Area Downs Syndrome Support | That's us! |
| Downs
Syndrome Association Langdon Down Centre Tel:
0845 230 0372 Website
www.downs-syndrome.org.uk |
Information on all aspects of Downs Syndrome |
Children and Young People Information Services (CYPIS) or Familiy Information Services |
The Family Information Services (CYPIS) are regionally based and provides free impartial information and guidance on a full range of childcare and children's services and resources across our area. The service is available to :
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| Black
Carers Project Kuumba Project . 20-22 Hepburn Road St Pauls Bristol BS2 8UD 0117 9144491 |
The Black Carers Project offers support to black and other ethnic minority carers in Bristol in many ways, these include: Information , Training Service , Development Service, Support Group , Young Black Carers - They produce a magazine twice a year called 'Embrace' which is sent out to carers as an information source on issues such as carers legislation, health issues, etc. |
| Contact
a Family
info@cafamily.org.uk |
Contact a Family provides support, advice and information for families with disabled children, no matter what their condition or disability. Contact a Family's vision is that all families with disabled children are empowered to live the lives they choose to live, and achieve their full potential, for themselves, for the communities they live in and for society. Contact a Family's mission and purpose is to remove the barriers imposed by society which prevent families with disabled children achieving their full potential, and to empower these families to live the lives they want to lead |
| Council for Disabled
Children C/o National Children's Bureau 8 Wakley Street London 0171 843 6000 |
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| The Downs Heart Group PO
Box 2460 |
The Down's Heart Group is a UK charity which offers support and information to families who have a member with Down's Syndrome and congenital heart defects.Everyone involved with the Group is themselves a parent (if not natural, then foster or adoptive), or in a few cases a grandparent. We have all found it helpful to be in contact with other families, perhaps it would help you too.
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| Disability
Alliance 1st Floor East Universal House 88-94 Wentworth Street London E1 7SA 0171 247 8776 |
Disability Alliance is a national registered charity with the principal aim of relieving the poverty and improving the living standards of disabled people. Our eventual aim is to break the link between poverty and disability. We provide information on social security benefits and tax credits to disabled people, their families, carers and professional advisers; undertake research into the needs of disabled people, with particular emphasis on income needs and seek to promote a wider understanding of the views and circumstances of all disabled people. We are also a campaigning organisation. Disability Rights handbookWe are best known as the authors of the Disability Rights Handbook , an annual publication with a print-run of 26,000, but also have a range of other guides and other information on our popular website. The Disability Rights Handbook provides clear and concise information on the welfare benefits and tax credits systems, as well as other areas such as social and residential care and a range of other issues relevant to disabled people and their families. We feel this makes us particularly well-placed to comment on the complexities of the UK benefit system. |
Families in Touch (Bristol) (Affiliated to CAF), Beachley Walk Centre, Beachley Walk, Old Barrow Hill, Shirehampton, Bristol, BS11 9PU Tel: 0117 982 0584 |
Families in Touch work with families from the Bristol area, who have children with special needs and disabilities, either physical, emotional, social or behavioural. Families with a disabled child (or children) often feel isolated, the aim of Families in Touch is to help relieve the stress and isolation. There are enormous benefits to be derived through the informal contact of other people, who are either in the same situation or experiencing similar problems, rather than meeting them through statutory avenues for the social, medical or educational needs of their disabled child or children. See factsheet |
| Family
Fund PO Box 50 York YO1 2ZX 0904 621115 |
The
Family Fund helps families with severely disabled children to have choices
and the opportunity to enjoy ordinary life. |
| Genetic Counselling (referral by your GP) |
Advice on genetics / help when considering having another child |
| TummyTroubleTummy Trouble |
The
Group offers support to the parents of children with gut motility disorders
– a range of conditions that result in disruption to the regular
movements of the digestive tract. For example: . |
| Khass Asian Opportunity Group
St Werburghs Community Centre Horley Road Bristol BS2 9TJ 0117 955 4070 |
Family support to Asian families with child with special needs Information for parents Workers include Urdu, Punjabi, Hindi and English speakers |
| Mencap 123 Golden Lane London 0171 454 0454 |
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| Musicspace Southville Centre Beauley Road Southville Bristol 0117 9531731 |
Bristol MusicSpace provides a community-based music therapy service for children and adults in Bristol and the surrounding area. Our team of state-registered music therapists is currently working with around 400 people each week at our well-equipped centre in Bristol and at our bases in Bath and Gloucester. We also provide an outreach service in a wide range of other settings from early years centres to residential homes. |
| Phoenix NHS Trust Upper Belgrave Road Clifton, Bristol 0117 9731127 |
Services for people with learning difficulties |
| Portage Service Also available in Bath and South Glos |
Portage is a home visiting educational service for pre school children with additional support needs and their families. It is based on the common sense principle that parents are the key figures in the care and development of their children. Portage assesses the needs of young children with learning difficulties and then, in partnership with parents, builds on the abilities the child already has to stimulate the development of new skills. Portage offers a carefully structured yet flexible system to help parents become effective teachers of their own children. You can refer yourself for Portage. |
| Portsmouth
Downs Syndrome Trust |
Information on all aspects of development and education, specifically speech development |
| Supportive Parents for Special
Children 3rd Floor Royal Oak House Royal Oak Avenue Bristol BS1 4GB Tel 0117 9897725(helpline) 0017 9897724 (admin/fax) |
Invaluable support if you are moving your child into the Education System. SPSC will help you find your way through the maze of Statements, SENs, LEAs, SENCOs, IEP, IPPs......etc! |
| Woodside Centre Woodside Road Kingswood Bristol |
For young children who have a sensory impairment - (eyesight/hearing) |